Studi Fenomenologi: Pengalaman Keluarga Merawat Penderita Pasca Stroke di Kota Jambi Tahun 2019

kadarwati kadarwati, Rahmi Ulfa, Elvi Oktarina


Stroke has a negative impact on families who provide care for post-stroke patients, the effect of which is due to functional deficits experienced by post-stroke sufferers which result in dependence on families for daily activities. The research objective was to explore in depth the experiences of families caring for post-stroke sufferers in Jambi city in 2019. This study used a qualitative method with a descriptive phenomenology approach. Participants in this study amounted to nine people who were selected using purposive sampling. Data is collected by semi-structured interview in duration of 60-90 minutes. Data analysis using the colaizzi method. The results found four themes, namely: dependence on daily activities on the family, family efforts to fulfill self-care activities, constraints faced by caregivers and family expectations. Conclusion: Families experience limited knowledge and skills, difficulties in meeting patients' ADLs, changes in physical conditions, changes in rest and sleep, changes in psychological conditions, changes in social activities, and economic changes. Therefore families need to get education from doctors, nurses and stroke team members starting from the time the patient is admitted to the hospital and re-evaluated when the patient is going home, about the knowledge and skills to treat post-stroke patients at home.


Family Experience; Caring for; Stroke Sufferers

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Arafat, R., Ratna, S., Mustikasari, & Majid, A. (2018). Spiritual Coping in People Living with Stroke. International Journal of Caring Sciences, 11(2), 658–662. Retrieved from

Blessing, M., & Oluwagbemiga, O. (2017). Effectiveness of Social Support in Coping with Stroke by Medically Ill Patient in Ibadan. International Journal of Neurorehabilitation, 04(04).

Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. Valle & M. King (Eds.), Existential phenomenological alternatives for psychology. New York: NY: Oxford University Press.

Daulay, N. M., Setiawan, & Sitepu, N. F. (2014). Pengalaman Keluarga sebagai Caregiver dalam Merawat Pasien Strok di Rumah. Jurnal Keperawatan Padjadjaran, 2(3), 161–170. :

Friedman, M. M., Bowden, V. R., & Jones, E. G. (2010). Buku Ajar Keperawatan Keluarga: riset, teori, & praktik. (E. Tiar, Ed.) (5th ed.). Jakarta: EGC.

Ganapathy, V., Graham, G. D., Dibonaventura, M. D., Gillard, P. J., Goren, A., & Zorowitz, R. D. (2015). Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity. Clinical Interventions in Aging, 10, 1793–1802.

Gbiri, C. A., Olawale, O. A., & Isaac, S. O. (2015). Stroke management: Informal caregivers’ burdens and strians of caring for stroke survivors. Annals of Physical and Rehabilitation Medicine, 58(2), 98–103.

Grant, J. S., Glandon, G. L., Elliott, T. R., Newman, J., Weaver, G., & Michael. (2004). Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research, Vol 27 No. Retrieved from doi: 10.1097/01.mrr.0000127639.47494.e3

Hesamzadeh, A., Dalvandi, A., Bagher Maddah, S., Fallahi Khoshknab, M., Ahmadi, F., & Mosavi Arfa, N. (2016). Family caregivers’ experience of activities of daily living handling in older adult with stroke: a qualitative research in the Iranian context. Scandinavian Journal of Caring Sciences, 31(3), 1–12.

Johnson, W., Onuma, O., Owolabi, M., & Sachdev, S. (2016). Stroke: a global response is needed. Switzerland: Bulletin of the World Health Organization.

Julianti, E. (2015). Pengalaman Caregiver Dalam Merawat Pasien Pasca Stroke di Rumah pada Wilayah Kerja Puskesmas Benda Baru Kota Tangerang Selatan. Jurnal Universitas Islam Negeri Syarif Hidayatullah Jakarta. Retrieved from

Kemenkes RI. (2017). Program Indonesia Sehat dengan pendekatan keluarga. Retrieved January 27, 2019, from

Kemenkes RI Ditjen Yankes. (2018, May 9). Perawatan pasien pasca stroke di rumah. Ditjen Yankes. Retrieved from

Lutz, B. J., Young, M. E., Cox, K. J., Martz, C., & Creasy, K. R. (2011). The Crisis of Stroke: Experience of Patients and Their Family Caregivers. Top Stroke Rehabilitation, 18(6), 1–16.

McCubbin, H. (1979). Integrating coping behavior ill family stress theory. Journal of Marriage and the Family, 41, 23–241.

Smeltzer, S. C., Hinkle, J. L., Bare, B. G., & Cheever, K. H. (2009). Brunner & Suddarth’s Textbook of Medical-Surgical Nursing (12th ed.). Lipincott Williams & Wilkins.

Taştekin, N. (2015). Rehabilitation and Quality of Life in Stroke Patients. Physical Medicine and Rehabilitation, 61, 97–98.

Tsai, P. C., Yip, P. K., Tai, J. J., & Lou, M. F. (2015). Needs of family caregivers of stroke patients: A longitudinal study of caregivers’ perspectives. Patient Preference and Adherence, 9, 449–457.

Venketasubramanian, N., Yoon, B. W., Pandian, J., & Navarro, J. C. (2017). Stroke Epidemiology in South, East, and South-East Asia: A Review. Journal of Stroke, 19(3), 286–294.

WHO. (2018). Stroke, Cerebrovascular accident. Retrieved May 24, 2018, from

WHO. (2018). The top 10 causes of death. Retrieved May 24, 2018, from



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